An association of and for thalidomide and similarly impaired people.
Dysmelia UK Project
Dysmelia is the reduction or malformation of upper or lower limbs.The Thalidomide Society is hoping to set up a UK wide forum for small organisations orgroups whose members have disabilities, conditions or syndromes which are similar tothose impairments caused by thalidomide and which will come under the broad definition of dysmelia.
The Society is keen to make contact with any organisation supporting families where a child or adult may have such impairments.
The Society would like to invite such small support groups to meet up initially in the form of a forum with support from the Thalidomide Society.
The aim would be to give such groups a more powerful voice and for the Society to assist in passing on the experience and knowledge gained by members over the past 50 years. We would hope to invite representatives of such Dysmelic groups to a conference next year 2011 to meet with representatives of the Thalidomide Society to see how to take this project forwards.
If you know of any groups that you feel might be interested in learning more about this project, please pass on our contact details: info@thalsoc.demon.co.uk 01462 438212
The Thalidomide Society
6 Abbis Orchard
Ickleford
Hitchin,
Herts SG5 3TN
Tel: 01462 438212
E: info@thalsoc.demon.co.uk
Loading ...
